Who We Are

Creator

Sabrina is the creator of the Eu Digo X (I Say X) Project, a businesswoman, and the mother of a teenager with Fragile X, Jorge, who is the reason the institute exists.

Vice President

Rafaela graduated in Business Administration with an emphasis in Foreign Trade at Universidade Positivo.

Manager

Luz graduated in Psychology at the Instituto Tecnológico de Sonora / México. She has a post-graduate diploma in Collective Health from Universidade Positivo. She graduated in Coaching at UP.

Administrative assistant

Maria de Lourdes is an accounting technician and businesswoman.

Project Coordinator

Graduated in Biomedicine with a qualification in Clinical Pathology from Faculdades Pequeno Príncipe and postgraduate student in Gene Therapy from Albert Einstein.

Wellbeing Project Coordinator

Graduated in Psychology from the Federal University of Pernambuco (UFPE) and in Law from the Pontifical Catholic University of Paraná (PUCPR)

Dr. Rui Pilotto graduated in Natural History – Biology at UFPR (1969), in Medicine at UFPR (1983). He holds a Master’s degree in Genetics from UFPR (1973), and a Ph.D. in Genetics from UNICAMP (1991). He is a professor and coordinator of some disciplines in UFPR’s medicine and psychology courses. He has experience in the field of Medical and Clinical Genetics, with an emphasis on Genetic Counseling. He is the National Coordinator of the Scientific Coordination of the National Federation of APAEs, and an Associate Professor at UFPR in the Department of Genetics.

Dr. Roberto Herai holds a Bachelor’s Degree in Informatics from UEPG, a Master’s degree in Electrical and Computer Engineering (UNICAMP), and a Ph.D. in Genetics and Molecular Biology (UNICAMP). He has a postdoctoral degree in Microorganism Genetics (UNICAMP) and another one in Cellular and Molecular Medicine (University of California San Diego, USA). He was a Research Associate at the University of California San Diego. He is currently a professor in the medical course and a permanent researcher in the Graduate Program in Health Sciences, both at the School of Medicine at PUCPR. In addition to research in the areas of computing, he also works in the areas of health sciences, such as genetic diagnosis, detection of genetic variability between organisms, neurodegenerative diseases, autistic spectrum syndromes, metabolic regulatory networks, phenotypes correlation, and cellular genotypes aimed at translational research.

Dr. Silvia Rodrigues graduated in Physiotherapy at Universidade Positivo and Pedagogia at Uninter. She has a degree in Dance from the Royal Academy – London and a master’s degree in Movement Science from UBC – Vancouver. She is a specialist in Atypical Behavior at UCLA – Peers Program and has specializations in Trauma-Orthopedics, Educational Neuropsychology, and Neuropediatrics from Universidade Positivo. She is a dance teacher and coordinator at Centro Educacional Tistu and a postgraduate teacher in the Pedagogy and Psychology courses at Positivo University. She has experience in the field of motor behavior, cognition with an emphasis on mediated learning. She is the owner of Meaningful Learning Curitiba.

Melissa is a lawyer specialized in medical and health law. She is the secretary of the OAB / PR Commission on the Rights to Health. She has a post-graduate degree in civil proceedings from Instituto Romeu Bacellar and is a postgraduate student in Medical Law at the University of Coimbra.

Renata is a lawyer who specializes in medical and health law. She is the chairwoman of the OAB / PR Right to Health Commission. She is a member of the CNJ Executive Health Committee in the State of Paraná. She is a post-graduate student in Corporate Law at FGV and in Medical Law at the University of Coimbra.

Alessandra has a degree in Physical Education and postgraduate degrees in Human Movement Science, Physical Education for Schools, and Physical Education and Nutrition.

She is a Physical Education teacher for the City of Curitiba, an artistic gymnastics teacher at Colégio Marista Santa Maria, and a personal trainer.

Charles has a degree in Physical Education and postgraduate degrees in People Management, Exercise Physiology, and Aquatic Activities.

He is a swimming teacher at Mobi Dick Sports Center and a personal trainer.

Teacher, speaker and alternative therapist with training in Ayurveda, Yoga, Reiki and Aromatology. Founder of Ser Inteiro. Training in Yoga Siromani (Teacher of Yoga) by Yoga Vedanta Forest Academy – The International Sivananda Yoga Vedanta Center; Extension course in Anatomy Applied to Yoga – UNIFESP, Escola Paulista de Medicina; Specialization in Women’s Health through Ayurveda and Yoga and graduated in Economic Sciences from UFPR